Our inaugural conference is an opportunity for the 15q13.3 community to get organized. We're meeting to hear the latest research, share what we've learned, and take an active role in setting the agenda for what comes next.

What's on the agenda:

- Talks on current research and emerging treatments

- Info sessions for new families

- A chance to join OpenReach, our patient-built registry

- Time to network and plan our strategy

Free to attend.

Confirmed speakers

Dr. Christian Schaaf, Institute of Human Genetics, University of Heidelberg

Dr. Takahiro Soda, University of Florida

Dr. Karun Singh, Krembil Research Institute, University Health Network, Toronto

More to come.

Register now

Please select one ticket per attendee.

Call for posters and short talks

The research track has open slots for posters and 10-15 minute short talks in addition to the confirmed speakers. If you work on 15q13.3 or on adjacent CNVs and neurodevelopmental conditions where mechanisms or interventions cross over, we want to hear from you.

Submissions are open through August 22, 2026. There is no submission fee. Presenters are asked to register through the standard Researcher / Clinician ticket above.

Questions: contact@reedsreach.org

Submit a proposal

FAQ

  • 1600 Market Street, 2nd floor, Center City Philadelphia. A modern building close to the Franklin Institute, Academy of Natural Sciences, Philadelphia Museum of Art, and Rittenhouse Square.

  • Hotel: We have a group rate at Sonesta Philadelphia Rittenhouse Square, a 3-minute walk from the venue. Book through the Reed's Reach link: https://book.passkey.com/go/ReedReachFoundation2026. Reservation cutoff is Tuesday, September 2.

  • Philadelphia is easily accessible via major interstates, international and regional airports, and is situated on the Northeast Corridor train line with easy accessibility to Boston, NYC, Washington, DC and points south.

    If traveling by air internationally, we recommend booking international tickets as soon as possible, no later than August 4th for the best rates.

    If traveling by air domestically, we recommend booking between August 4th and September 3rd to get the best airfare.

  • Breakfast and lunch are included during the conference. The evening reception is also included.

  • We are planning accommodations for kids through a firm with expertise in special needs events. More details to come.

  • During checkout you will be asked for a photo release so we can use photos that include you in updates we share with the community on our website, in social media, and through our mailing list.

    Your privacy is of paramount importance to us. If you do not wish to be photographed you will be issued a ‘do not photograph’ lanyard on the day of the conference and photos that include you will not be shared.

  • The conference will be held in an accessible location. If you have specific accessibility needs, please list them in the questionnaire during check-out and we will do our best to accommodate them.

  • The conference will be held in English. We will offer translations of the livestreams after the conference.

  • You can cancel at any time through your event link included in your receipt.